Full of Boys

Finding the adventure in the blues, greens and grays of life!

Molly Mutz Update June 17, 2008

Filed under: Faith — fullofboys @ 10:08 am
Tags: , , , , ,

I know that this week my posts have centered around asking for prayers. I totally believe in the power of prayer for healing but also for peace and wisdom. Sunday I wrote about Molly Mutz and her parents Rebecca and Jacob. The decisions they have had to make have been hard. This email from Dennis (Rebecca’s father) via Christy came today.

Molly’s condition remains the same, critical. Multiple meetings with neonatologists, pediatric cardiologists (from here to Little Rock, to Indiana to Mayo Clinic), neurologists, and interventional radiologists, have confirmed:
Much of her blood is going to the brain.
Because of the abnormal vein and aneurism, the blood that’s going there is ineffective, since it’s not going to her lungs, and the rest of her body…as a result 60-80% of her blood is going to her brain, normally it should be 10-15%. And because of this she is in congestive heart failure.
Damage is substantial to both halves of the brain and permanent.
As a result they have two options:
Brain surgery, very dangerous and at best a questionable procedure, since she’ll never function normally without a miracle. If the surgery is successful, the congestive heart failure could be slowed and with a couple more surgeries, perhaps eliminated. Leaving Molly with a damaged brain and many more dangerous surgeries.
Second option is to withdraw life support and enjoy what hours or days God may give Rebecca and Jake with her. It is likely she’ll only live a few hours.

I have to tell you that listening and watching Rebecca and Jake (with Molly in Jake’s arms) grapple over what God wants them to do in terms of treatment of their daughter has been THE most difficult thing I’ve ever watched. It’s been holy. Worshipful. Heart rending. It is beyond imagination and words. I know that some of you have been through this, but oh how tough to watch two people you love enter into this deep valley. I marvel at how honest and real they’ve continued to be. Their faith and trust in God is remarkable.

They have decided not to operate. And in the coming days, Rebecca and Jake have decided to remove the life support.

What has been unimaginatively tough has just become a lot tougher. Please pray for Jake and Rebecca’s broken hearts. Scriptures tell us our days are numbered. Molly’s little life may be comprised of less than 7 days.

I am grateful for your prayers and sustaining love.

God is God. We are surrendering to Him and His ways. Blessed be the Name of our God. There is NO hope in any other.

Dennis

Please continue to life up this family. My heart breaks and my eyes fill with tears as I read and read again that letter.

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5 Responses to “Molly Mutz Update”

  1. Krista Says:

    HI. I don’t know if you can or if they already know of this organization, but if they haven’t thought of it could you let them know that there is a photographer’s group called Now I Lay Me Down To Sleep that sends a volunteer photographer to take pictures of the baby and parents (and whoever they want) so that they can have the memories of their time with her.
    Thanks!

  2. Lori K Says:

    Jenn,

    We’re praying for them all. May they find comfort in the joy that Molly will be a precious angel soon.

    We’re also praying for Isaiah. Please update us on his health.

    Hope you and Heath are holding up ok. Praying for you guys, too!

    Lori

  3. nearlynormalized Says:

    I was just going to have a good time on my blog regarding the Lakers and Celtics and then I read about Molly. Please know that my prayers, and thoughts are with her family and those moments that she is held before she is released to GODS care. Her spirtit can fly and will always be remembered. Go with God.

  4. Rebekah Says:

    My heart is breaking right now for this family that I do not even know. I will be on my knees and I will spread the word. Thanks again for the updates.

  5. Carrie A. Says:

    Dear Jacob and Rebeccah,
    My heart goes out to you both and famlies. Having had to make the same decision 11 years ago. I can remember it like it was yesterday. But with alot of healing and growth. Knowing our precious Savior is right beside us. I will keep you in my prayers.
    Please take advantage of NowI Lay Me Down to Sleep Photography. That is one thing I wished I had is more than just 4 pictures.
    Psalm 68:19 Blessed be the Lord, Who bears our burdens and
    carries us day by day.
    Carrie


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